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Peripheral Neuropathy: Any Riders Dealing With It Successfully?



 
 
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  #31  
Old March 18th 13, 12:14 AM posted to rec.bicycles.tech
datakoll
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

TENNIS ?

I doah follow the Vitstream until Big News shoves it in...
several years ago vitamin supplements caused cancer but this year vitamin supplements increase life spans.

Excess D is not gpod.

excess C promotes long life.

as you know ? I forwent (!) red meat. The marathon distances went from 7 to 13 miles, the joint aches stopped. basically I feel better esp afterswilling several cans of ATTACK.
Ads
  #32  
Old March 18th 13, 02:31 AM posted to rec.bicycles.tech
Joe Riel
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

Martin writes:

Conversely, a few years ago I started taking a multivitamin with B12.

Some months later began to experience a weird tingling in my right big

toe. Saw a specialist. He suggested the problem could be excessive

vitamin B12 and ordered a blood test, which confirmed his hypothesis.

Quit taking the supplement and the tingling quickly disappeared.


High doses of B6 can cause neuropathy, but I haven't heard of high B12
intake causing it. Multivitamins usually contain B6.


Yeah, after responding I started wondering if it was B6 rather
than B12. Pretty sure, now, it was B6.



The Linus Pauling Institute has good (and I think trustworthy) information on vitamins:
http://lpi.oregonstate.edu/infocente...ins/vitaminB6/
http://lpi.oregonstate.edu/infocente...ns/vitaminB12/


--
Joe Riel
  #33  
Old March 19th 13, 12:28 AM posted to rec.bicycles.tech
thirty-six
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

On 17 Mar, 22:09, Joe Riel wrote:
Martin writes:
I was diagnosed with small fibre idiopathic peripheral neuropathy in 2005. It progressed pretty much as the textbooks said it would. I stopped cycling and kept walking to a minimum because both seemed to make things worse..


For various reasons (long story) I became 99.9% sure it was caused by vitamin B12 deficiency and started taking oral B12 supplements (methylcobalamin, not cyanocobalamin). My B12 blood test was normal so the neurologists I saw laughed off this approach but said the B12 would not do any harm. (B12 blood tests are very unreliable, particularly in people who exercise regularly.) I also took alpha lipoic acid, acetyl-L-carnitine, coenzyme Q10, and a good multivitamin containing all the B-group vitamins. *Within about 6 months my neuropathy started to improve, much to the surprise of the neurologists. I now get only mild symptoms, but I am riding as much as I like and still taking B12.


If you are over 50 there is a high probability you may be deficient in B12. I learned a lot from this support group:


http://neurotalk.psychcentral.com/forumdisplay.php?f=20
or *http://tinyurl.com/ajzvup2


This program is well worth listening to.


http://www.abc.net.au/radionational/...rt/vitamin-b12...
or *http://tinyurl.com/8


Conversely, a few years ago I started taking a multivitamin with B12.
Some months later began to experience a weird tingling in my right big
toe. *Saw a specialist. *He suggested the problem could be excessive
vitamin B12 and ordered a blood test, which confirmed his hypothesis.
Quit taking the supplement and the tingling quickly disappeared.

--
Joe Riel


Wow, those that are "defficient" in B12 serum levels usually end up
injecting as they are otherwise unable to make the magic numbers.

Supposedly mushrooms contain adequate amounts which are easily
absorbed and utilised. I usually have a broth with loads of
mushrooms in each month but have no idea what a blood analysis would
show.
  #34  
Old March 23rd 17, 03:09 PM posted to rec.bicycles.tech
[email protected]
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

I started racing bikes after using riding to lose weight at 45-ish? I started at the beginning of the Lance Armstrong era, got my US Cycling card and used him as an inspiration. I trained 80 miles a day, everyday rain or shine, if the temp was 34 or above. If it was below I did two hours on the bike trainer. Later I became a bike messenger to work and train at the same time, but I had to work in all weather and temp degrees. I raced all the road races I could in the NYC area for 5 years, mostly Masters, did a little track racing too. Half way thru the 5 years my feet started burning way too much and I started having problems at night. I used Speed Play pedals and in spite of the Lance method of spinning, a 52 or 53 front ring wasnt big enough...I got a 54 Dura Ace. I insisted on doing things my way which usually drew angry responses from my know it all riding partners. I just ignored the pain for a long time, because I had to work etc. It seems to have gotten more pronounced after I accidentally kicked a 1.5 liter size bottle of Patron Tequila. I now have nerve damage in both of my feet equally. I do have pre, pre diabetis, don't take insulin or anything like that, I think my numbers are 5.7? but I think it has to do with with cycling. I stopped riding 10 years ago, after getting hit by a limo and buying a bar with the insurance money.
  #35  
Old March 23rd 17, 03:43 PM posted to rec.bicycles.tech
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

On Tuesday, March 5, 2013 at 5:59:17 PM UTC-8, (PeteCresswell) wrote:
I've got something called "Insidiously-progressive ideopathic peripheral
neuropathy" - which seems to be medical terminology for "Your sensory
nerves are slowly dying, we have no clue why, there's nothing to be done
about it... that will be $150.00, and you can pay the receptionist on
the way out."

I've been coping pretty well so far: monster flats on my pavement and
SUS bikes, cages on my SS.

But this winter seems to have brought a new level of something-or-other.

The Big Bite comes when one, raises out of the saddle, applies some
horsepower, and a foot slips off the pedal that it's already half off
of. Kind of like breaking a chain under load except there's no pedal
underfoot - just an intimate re-acquaintance with the top tube.

I've been avoiding clip-ins because:

- I'm not sure I can afford to pay the inevitable dues

- I like being able to walk normally when not riding - and
especially on the hike home with a broken frame.

- I'm guessing the increasing lack of feedback will create
an issue with being able to clip in.


The Question:

Is anybody else dealing with this? Do you have any solutions?

Have you resorted to clip-ins?
--
Pete Cresswell


I was having this problem and I use Look Delta pedals. I finally got a pair of Lake shoes that are designed correctly around the toe box. This thankfully ended the problem. You still have to replace the cleats relatively often but that's a price I'm willing to pay.

If you like walking more or less normally off the bike on a ride you can get Shimano SpD.s - I would suggest the XT version and not the cheapies which are easier to get into but harder to break out of. MTB shoes have a much stiffer sole and good one's will not flex. When you walk it takes a little getting used to but they don't slip on even slippery floor that normal shoes could. I have several pairs of lace-ups but they are too flexible for me and I reverted to Pearl Izumi. While their street shoes have narrow toe boxes their carbon MTB shoes have enough room.

In any case I prefer the rachet closing vs. the cable closures that Lake started. But they both work well.

The anti-seizure medication I take numbs the front of my feet so it takes a lot of damage to feel it and I was getting to the point where I couldn't walk.

I really suggest you stay away from clips and straps. These disappeared almost immediately when Look developed their clip-ins.
  #36  
Old March 23rd 17, 03:45 PM posted to rec.bicycles.tech
[email protected]
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

On Thursday, March 23, 2017 at 7:09:40 AM UTC-7, wrote:
I started racing bikes after using riding to lose weight at 45-ish? I started at the beginning of the Lance Armstrong era, got my US Cycling card and used him as an inspiration. I trained 80 miles a day, everyday rain or shine, if the temp was 34 or above. If it was below I did two hours on the bike trainer. Later I became a bike messenger to work and train at the same time, but I had to work in all weather and temp degrees. I raced all the road races I could in the NYC area for 5 years, mostly Masters, did a little track racing too. Half way thru the 5 years my feet started burning way too much and I started having problems at night. I used Speed Play pedals and in spite of the Lance method of spinning, a 52 or 53 front ring wasnt big enough...I got a 54 Dura Ace. I insisted on doing things my way which usually drew angry responses from my know it all riding partners. I just ignored the pain for a long time, because I had to work etc. It seems to have gotten more pronounced after I accidentally kicked a 1.5 liter size bottle of Patron Tequila. I now have nerve damage in both of my feet equally. I do have pre, pre diabetis, don't take insulin or anything like that, I think my numbers are 5.7? but I think it has to do with with cycling. I stopped riding 10 years ago, after getting hit by a limo and buying a bar with the insurance money.


Rather an extremist aren't you? Everything or nothing? They'll have fun at your post-mortum.
  #37  
Old March 23rd 17, 03:53 PM posted to rec.bicycles.tech
Duane[_3_]
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

On 23/03/2017 10:09 AM, wrote:

I started racing bikes after using riding to lose weight at 45-ish? I started at the beginning of the Lance Armstrong era, got my US Cycling card and used him as an inspiration. I trained 80 miles a day, everyday rain or shine, if the temp was 34 or above. If it was below I did two hours on the bike trainer. Later I became a bike messenger to work and train at the same time, but I had to work in all weather and temp degrees. I raced all the road races I could in the NYC area for 5 years, mostly Masters, did a little track racing too. Half way thru the 5 years my feet started burning way too much and I started having problems at night. I used Speed Play pedals and in spite of the Lance method of spinning, a 52 or 53 front ring wasnt big enough...I got a 54 Dura Ace. I insisted on doing things my way which usually drew angry responses from my know it all riding partners. I just ignored the pain for a long time, because I had to work etc. It seems to have gotten more pronounced after I accidentally kicked a 1.5 liter size bottle of Patron Tequila. I now have nerve damage in both of my feet equally. I do have pre, pre diabetis, don't take insulin or anything like that, I think my numbers are 5.7? but I think it has to do with with cycling. I stopped riding 10 years ago, after getting hit by a limo and buying a bar with the insurance money.



What does your doctor tell you?
  #38  
Old March 23rd 17, 06:58 PM posted to rec.bicycles.tech
Andre Jute[_2_]
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Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

On Wednesday, March 6, 2013 at 2:04:40 PM UTC, (PeteCresswell) wrote:
Per Nate Nagel:
I don't have your issues
(my sympathies, BTW, that sounds horrible)


Some years back I found myself in the office of one of the big-time
neurologists at University Of Pennsylvania Medical Center.

The guy wound up crying on my shoulder a little bit - to the effect of:
"Do you have *any idea* what a relief it is to talk with a patient like
you - whose only problem is that they can't feel anything in their
legs???"

That put it into perspective for me.
--
Pete Cresswell


I came home from the hospital one time and gave my wife a summary of three days of tests, "Basically, they told me I'm one of their success stories, and to bugger off so they can have the time for a really sick patient. And never mind that I lose half my day to dealing with the side effects of the massive doses of chemicals they prescribe. Those people have a weird definition of success."

All the same, it's a dangerous disease for cyclist to have. My sympathies.

I use VP 191 pedals on all my bikes for their silky-smooth action but they're on the small side, with my size 12s being only marginally on them, though after so long it doesn't bother me as long as I wear really thick rubber soles, as I do anyway to protect the brain of a genius from the unevenness of the ground. At one stage I looked for bigger platform pedals and couldn't find any, except those nasty bear trap things. That was when I discovered that vintage rubber block pedals are considerably larger than modern block pedals like the 191. A pair of Phillips pre-war pedals were over twice the surface area of the 191. They do have some nuisances, like serviceable rather than sealed bearings, but i floated out the old grease on oil and repacked with modern marine grease and the local bike mechanic, over 80, told me that I needn't repack more often than every five to eight years. Unfortunately those superior pedals -- in their day pretty commonplace -- went to that big bicyclery in the sky one morning before dawn when on a road I know intimately at about 50kph I hit a hole in the edge of the road where a piece of huge, heavy harvest equipment had broken off a chunk of tarmac since the last time I needed the very last inch of that road to make the corner. The ditch right next to the road was eighteen inches deep, my pedal caught the edge of the road, and was snapped right off. I had bigger worries at the time, like the pony in the paddock across the road laughing at me as I tried to extract myself from a thorny hedge into which I had thrown myself as the softest option, not being able to see in the dark that it wasn't springy leylandia but aggressive gorse. I found those NOS Phillips vintage pedals on eBay.co.uk; I landed in Ireland them for maybe thirty or forty bucks, less than the price of the sort of trick pedals most of RBT rides on.

Andre Jute
There are trial and error merchants, and then there are neurologists
  #39  
Old March 24th 17, 12:37 AM posted to rec.bicycles.tech
Mike A Schwab
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Posts: 443
Default Peripheral Neuropathy: Any Riders Dealing With It Successfully?

On Tuesday, March 5, 2013 at 7:59:17 PM UTC-6, (PeteCresswell) wrote:
I've got something called "Insidiously-progressive ideopathic peripheral
neuropathy" - which seems to be medical terminology for "Your sensory
nerves are slowly dying, we have no clue why, there's nothing to be done
about it... that will be $150.00, and you can pay the receptionist on
the way out."

I've been coping pretty well so far: monster flats on my pavement and
SUS bikes, cages on my SS.

But this winter seems to have brought a new level of something-or-other.

The Big Bite comes when one, raises out of the saddle, applies some
horsepower, and a foot slips off the pedal that it's already half off
of. Kind of like breaking a chain under load except there's no pedal
underfoot - just an intimate re-acquaintance with the top tube.

I've been avoiding clip-ins because:

- I'm not sure I can afford to pay the inevitable dues

- I like being able to walk normally when not riding - and
especially on the hike home with a broken frame.

- I'm guessing the increasing lack of feedback will create
an issue with being able to clip in.


The Question:

Is anybody else dealing with this? Do you have any solutions?

Have you resorted to clip-ins?
--
Pete Cresswell


Sometimes you loose the ability to absorb Vitamin B12 from food, and need monthly injections.

Loosing feeling in the feet can be from diabetes. Cut back on wheat, grains, carbs.
 




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